Where I Am Right Now

Like thousands of others in the nation, I live every day with Cystic Fibrosis. This is a chronic condition that gets progressively worse over time. While there is currently no cure, there are ways of fighting the disease and staying as healthy as possible. This is, in short, my journey so far. I’m 20 years... Continue Reading →

Just Breathe.

  Just Breathe. Breathe because you have to and because you still can. No one teaches you how to breathe when come out of your mother's womb. Your body somehow already knows. We aren't aware of how hard breathing will become one day. You don't realize that the lack of breath might kill you. You don't... Continue Reading →

Ever wonder what your CF mutations mean? The letters and numbers in your mutation represent what part of the CFTR is defective in your body. The capital letters are the single letter codes for amino acids. This infographic breaks down the significance of each part of a mutation and gives examples of a few common mutations.... Continue Reading →

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